Our little Tommy was diagnosed with Acute Lymphoblastic Leukemia on tuesday December 16, 2008. He is quite a fighter, and we know he will overcome this obstacle. He was sick on and off with croup for about 3 months, it just never quite went away. He would complain a lot about his legs hurting, which a lot of little kids complain of having "owees" a lot. We thought it was just growing pains, or maybe calcium deficiency. Then he was looking more and more pale, and the day before I brought him to the pediatrician we found random bruising on his body. So I took him to my wonderful pediatrician Dr. Strong, and we went to get his blook tested, later that day we were admitted to Primary Children's Medical Center and diagnosed with Cancer.
Tommy is seriously amazing, he is my HERO! I can't imagine being 4 years old and taking on something as HUGE as this, he has quite the battle ahead of him but we know he can do it! He was so excited to go to the hospital, he couldn't wait to sleep there and have parties, he said. I think he may have misunderstood what it's all about up at the hospital, but that's alright we talked about all the fun things we would do at the hospital all the way there. He has been a trooper the whole time, and has been the nurses favorite patient because he's a little charmer.
So he had his central line put in 2 days ago and that is how he will recieve all of his meds, his Chemo, pain meds, they will draw blood through there too. It is a port that runs from his chest to his superior vena cava of his heart, so everything flows right into the bloodstream. The same surgery he had his first of many, unfortunately, lumbar puncures to check for leukemia in the spinal fluid. That came back negative, which is a hige blessing, otherwise they have to treat that another way too, and it is a lot worse. He also had a bone marrow biopsy to see how much the leukemia has spread. So he has been very sore from all of that.
Today he started his first treatment of Chemotherapy. The first month is supposed to be very intense for these little ones, they want to have him into remission after the first 29 days, if not before. Then he continues on with the treatments for 3 1/2 years. They have found that that is how long it takes to completely kill the leukemia in boys. So we are in this for the long hall, but I know that the Lord will and is blessing us. I wouldn't be able to go a day through this without the love of our savior Jesus Christ, that is my rock. I have great faith that the Lord will watch over Tommy and will make him well. For some reason Tommy needs this trial in his life, it is very hard to understand now with him being only 4, but someday we will understand and it will be worth it.
It breaks my heart to watch him go through this and there is absolutely nothing I can do but watch. If I could take this disease from him I would in a heartbeat! He is such a special boy. He has been in severe leg pain the past few days because the bone marrow is swelling with the leaukemia cells multiplying and that pushes against his bones. For the past few days he has pretty much been confined to his bed because it hurts to bad to move or stand. For my crazy, roudy 4 year old, it is heartbreaking to watch him like this. We have done a lot of puzzles, coloring, watched lots of movies, read lots of books, and played LOTS of lego star wars. Tom and I are gonna be pretty good at that game, I think.
Tomorrow is another day, I hope it is better than today. Today was really hard on him, I think he is starting to get a little down. He has had a lot of visitors from our family and lots of freinds. We are so grateful for all the visits, it brightens up his day. Please if you do come, especially if you are bringing your kids, everyone needs to be 100% healthy! Tommy's immune system is way down and with the Chemo will only get weaker in days and weeks to come, so please wait until everyone is totally healthy to visit. Trust me there will be plenty of time for visits!
Thank you all for your calls, we have had an overwhelming amount of Love and support, We appreciate it more than we can express. Thank you for you gifts, they are so thoughtful and Tommy is enjoying them he thinks it's already Christmas. Thank you for your prayers, there is nothing more important right now than prayer, it is ultimately what is going to get us through this battle. We love you and hope to see you all healthy soon!
Check back soon!
We will keep Tommy in our thoughts and prayers. We know that Tommy will get through this. He is and always has been a tough little guy! Let us know if you need anything.
ReplyDeleteWhat beautiful sentiments Heidi! Although I have never met your little boy, he sounds like a fighter! We will continue to pray for Tommy and I know that the Lord will look over you and your family!
ReplyDeleteOH my goodness! What a HUGE thing for such a little boy to have to go through! I am so sorry to hear the news but we will keep Tommy and your family in our thoughts and prayers.
ReplyDeleteLOVE YOU!
Andrew and Karly (Kinnersley) Mellen
Heidi, I am so sorry to hear about your little boy Tommy! I know what it is like going through all the blood work stuff! He truly sounds like a fighter. What a scary thing this must be for you! I can't even imagine being on your side having to watch your little boy have to go through such an ordeal! If you need anything! I am here for you! I would love to talk to you if you need me! I am just a phone call away! We will be fasting and praying for your family!! I know your family will be watched over! Love you girl!
ReplyDeleteLindsay
I am overcome that he has to go through this, that all of you have to go through this. I am so sorry. You sound so strong, and Tommy sounds like he is being a champ. Is there anything that you need? We are going to be in SLC from the 22nd to the 29th if I can drop by dinner, bring some groceries, take your kids ice skating, anything. all our love.
ReplyDeleteOh Heidi - my heart is breaking for you and your sweet little Tommy. But what a great mom he has - one full of faith and trust in the Lord. I think that watching someone we love suffer is one of the hardest things we go through on this earth. However, the Lord knows that, knows you and knows Tommy. Trust Him. I will be praying for you and your family and also the doctors. Don't forget to take care of yourself as I'm sure you want to be there for him as much as you can.
ReplyDeletemuch love - Andrea Ence McConkie
Heidi, I am so sorry to hear about Tommy. Although, I've never met him and haven't seen you in years, I have always felt a strong connection to your family. I think I spent more time at your parent’s house growing up than I did at my house. The Peterson’s have always been like a 2nd family to me. I'm truly overcome with emotions and I can't imagine what it must be like for you. Even though Tommy might not fully understand what is happening to him right now, I think it will surprise you how strong he will be and how much you will learn from him and this difficult experience. Little kids are so amazing! Your family will be in my thoughts and my families prayers.
ReplyDeleteRob Adams
Heidi...You and Tommy are in our families prayers. I will check back often, I am so moved by your thoughts and your testimony. You are so right, your Tommy is strong and the Lord will bless him as he fights his battle the next few years. I would love to help out with anything, if I can.
ReplyDeleteDeb
Heidi,
ReplyDeleteI am so sorry to hear about Tommy. Seeing Jake Jamieson go through this the last 8 months has been heartbreaking, but thank goodness there is a light at the end of the tunnel. Jake is doing great and so will Tommy. He is darling. You guys will be in our thoughts and prayers.
Angie Johnson
Thanks for creating the blog. We want to follow Tommy's progress. We know how much leukemia sucks but we have great doctors and treatment here in Utah. That is a blessing. Our prayers are with you.
ReplyDeleteI'm sorry Heidi. I will say lots of prayers for Tommy.
ReplyDeleteWhat a lucky little boy to have an amazing support of parents and family! Just in this little blog, you can tell that there is so much LOVE! We will be praying for your sweet Tommy and continually thinking about your family...
ReplyDeleteYou and your family will be in our thoughts and prayers every day! I wish I could say something that would really matter but words just aren't enough to express how sorry I am to see you have to go through this- Know that we are with you
ReplyDeleteJaime and Blaine Smith and Julia
Your family will be in our thoughts and prayers continuously.
ReplyDeleteHeidi and Tom,
ReplyDeleteOur thoughts and prayers are with you and your son. We hope that his treatment is successful.
Todd and Stephanie Jorgensen
Hey it's Emily. I'm sad that he has lukemia.
ReplyDelete