The New "Do"... Just in time for Summer!

Tommy's hair has been falling out like crazy the last couple of days. He would wake up and there was hair all over his pillow and blankie, when we washed his hair half of it was gone when he got out of the shower. He had had it with hair all over him! So yesterday I called Tom and said you need to come home and shave Tommy's head, ASAP! I asked him if he wanted me to call all his cousins and friends over again, and he said no he didn't want everyone watching him this time. So it was just the family. It was quite emotional, I was surprised it was that hard the second time around. I think because you think of all that he has been through at such a young age, and what a trooper he has been the whole time. I am amazed at his attituda, besides being on the steriods the last couple weeks, he has been such a sweetheart and has grown-up a lot through this process. He looks so cute with his little bald head, I love to just sit and rub it it's so soft. I am looking forward to his hair growing back and to see what color and texture it will be next. It's a nice cut for summer, just have to lather on the old sunblock!

Update on Tommy

Tommy has really slowed down again, his treatment is really taking a toll on his little body. The last week or so he hasn't wanted to do much but eat and sleep. You gotta love steroids! I have had it with these steroids, fighting with Tommy to take 4 pills in the morning and 3 1/2 at night, and him eating all day and all night is getting exhausting. I am trying to be so patient with his moodiness, and trying to remember it's not him it's the steroids talking, but it is worse than a girl. We can't let Zachy cry or be his normal loud self or Tommy screams at him, the steroids must make everything much louder than it really is. He gets headaches daily from the side-effects of them. The only thing Tommy wants right now is quesadillas, yesterday we ran out of tortillas, you would have thought it was the end of the world at our house. He was yelling at me to go to the store first thing in the morning to get more. He ended up going to his buddy Kolsyn's house and told Tifini he had to have a quesadilla...Thanks Tiff, you're a life-saver! So by the end of the day, he had had 6 quesadillas. He has put on some more weight, he looks cute and chubby. He doesn't like to tell me what he wants either, it's all a mind game...ahhhh! Sorry just had to vent. The last few days have put me over the top! Bless his heart, he is miserable I understand that. I am just really looking forward to Thursday when we are OFF these steroids again.
I love that little boy, it is so hard to see him suffering this way. The last week he's been really sick, achy, and tired. If we can just get through about the next 5 or 6 weeks we're in good shape, they'll be the toughest 6 weeks we've had so far. At least that is what the doctors, nurses and the Jamieson's tell us. We'll see, maybe it won't be as hard as they anticipate. But I am prepared ( I think) for the worst, just in case. As long as Tommy doesn't get any funky viruses or the swine flu, he should be alright.
Thank you all for your continued support. We love you and are so grateful to all our families and friends for being our rock through this trial. We are so fortunate to have the gospel and for all the blessings it brings into our lives. We thank our Father in Heaven everyday for our little Tommy. Please continue to pray for him.

Sand Dunes!

Tommy is heading into a real tough part of his treatment, and we wanted to get away while we still could. So we took a quick weekend trip to the sand dunes, a little get away for Tommy and the rest of us of course. We haven't taken these kids anywhere for at least 6 months. He hasn't been feeling great, and may starting to go downhill again. He was really excited to go, and really tried to have fun. It was tough to watch because usually that is Tommy's favorite thing, to go ride his 4-wheeler especially at the sand dunes. He didn't have a lot of energy like he usually does, but he still had a great time. The kids favorite part is to play in the "big sand box" like Zac called it.

Spring Baseball

Tommy is playing Spring Baseball, whenever he is up to it. This is the one game he has made it to so far, he had fun with his buddy Aiden. We hope he'll be able to play more games. Way to go Tommy!